DOCUSERIES
DOCUSERIES
SEASON 1:
PEDIATRIC ILLNESS
currently in production
Mission
Stories that highlight both the challenges and joy of families facing life-altering pediatric illness
We want to share these stories as a way of saying, “We see you. We see your struggle. We see your pain. We see the beauty of how you find joy in everyday, ordinary moments while also being weighed down by the emotional pain that sometimes seems to never end.”
There is often a lack of awareness and understanding about the challenges and struggles faced by children and families dealing with pediatric illness. This can lead to stigmatization, isolation, and limited support for those affected by pediatric critical illness. Through short films and a companion podcast we hope to cultivate compassion, kindness and connectedness when you step into the lives of these families’ joy and pain, while also being a powerful reminder to embrace your own imperfect joy.
Mission
Stories that highlight both the challenges and joy of families facing life-altering pediatric illness
We want to share these stories as a way of saying, “We see you. We see your struggle. We see your pain. We see the beauty of how you find joy in everyday, ordinary moments while also being weighed down by the emotional pain that sometimes seems to never end.”
There is often a lack of awareness and understanding about the challenges and struggles faced by children and families dealing with pediatric illness. This can lead to stigmatization, isolation, and limited support for those affected by pediatric critical illness. Through short films and a companion podcast we hope to cultivate compassion, kindness and connectedness when you step into the lives of these families’ joy and pain, while also being a powerful reminder to embrace your own imperfect joy.
Each episode will be about 20 minutes in length, during which they will take viewers on a journey to experience life from another person’s perspective. These films will show the families’ challenges and resolve with a day-in-the-life focus to highlight the ways in which they find joy in moments spent with those they love. Episodes 1 & 2 are currently in production. When completed, they will be available through an app by Entertainment 2 Affect Change that is available on smart TVs and mobile devices.
Each episode will be about 20 minutes in length, during which they will take viewers on a journey to experience life from another person’s perspective. These films will show the families’ challenges and resolve with a day-in-the-life focus to highlight the ways in which they find joy in moments spent with those they love. Episodes 1 & 2 are currently in production. When completed, they will be available through an app by Entertainment 2 Affect Change that is available on smart TVs and mobile devices.
Currently in Production
Currently in Production
Episode 1
Running With Victory
Premiere anticipated Fall 2023
An inspirational story of a dad who is running for his daughter, Victory, in the Boston Marathon. Because Victory was diagnosed with Trisomy 13, Brian and his wife, Corrine, were encouraged to terminate the pregnancy and then told they would only be offered comfort care after her birth. It wasn’t until they found one doctor who supported their decision to fight for their daughter’s life that they were given orders to have her transferred to Boston Children’s Hospital where she spent 6 months in the NICU. Now she is a spunky, happy, vibrant 4 year old who, despite having a lot of complex medical needs, is most undoubtedly a beautiful life that is worth fighting for. They want to get her story out there to make a change for other families who are struggling with getting support through rare pediatric diseases.
Episode 1
Running With Victory
Premiere anticipated Fall 2023
An inspirational story of a dad who is running for his daughter, Victory, in the Boston Marathon. Because Victory was diagnosed with Trisomy 13, Brian and his wife, Corrine, were encouraged to terminate the pregnancy and then told they would only be offered comfort care after her birth. It wasn’t until they found one doctor who supported their decision to fight for their daughter’s life that they were given orders to have her transferred to Boston Children’s Hospital where she spent 6 months in the NICU. Now she is a spunky, happy, vibrant 4 year old who, despite having a lot of complex medical needs, is most undoubtedly a beautiful life that is worth fighting for. They want to get her story out there to make a change for other families who are struggling with getting support through rare pediatric diseases.
Episode 2
Super Sammy Receives a Heart
Premiere anticipated 2024
This 5-year-old and his family are preparing to go on vacation to Give Kids The World Village in Kissimmee, Florida. It’s not an unusual occurrence for families to travel to the Florida Parks, but for them this is an extraordinary moment. At one year post heart transplant, this will be the first time they will be able to leave more than 3 hours from home. They described this opportunity as “the gateway to the rest of their lives”.
Along with sharing Sammy’s story, his family wants to recognize that another family is morning the loss of their child one year go. They want to thank this family for literally giving Sammy life through their son’s organ donation as well as all those who have done the same, and to encourage anyone who might be on the fence about being on the donor list to sign up.
Episode 2
Super Sammy Receives a Heart
Premiere anticipated 2024
This 5-year-old and his family are preparing to go on vacation to Give Kids The World Village in Kissimmee, Florida. It’s not an unusual occurrence for families to travel to the Florida Parks, but for them this is an extraordinary moment. At one year post heart transplant, this will be the first time they will be able to leave more than 3 hours from home. They described this opportunity as “the gateway to the rest of their lives”.
Along with sharing Sammy’s story, his family wants to recognize that another family is morning the loss of their child one year go. They want to thank this family for literally giving Sammy life through their son’s organ donation as well as all those who have done the same, and to encourage anyone who might be on the fence about being on the donor list to sign up.
Support
SAMMY & VICTORY
Support
SAMMY & VICTORY
Inspiration
it all started with one family in need
Abriella was battling the same mitochondrial disease that took her brother Bryce just two years earlier. Our community came together to throw her a dream wedding, a celebration of love for everyone in her life to rally around.
Inspiration
it all started with
one family in need
Aubriella was battling the same mitochondrial disease that took her brother Bryce just two years earlier. Our community came together to throw her a dream wedding, a celebration of love for everyone in her life to rally around.
Imperfect JOY®
Melody Joy Paine
Filmmaker, Photographer, & Storyteller
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