Pediatric Rare Disease Collection / Meet The Crew
Pediatric Rare Disease Collection
Meet The Crew
MELODY joy paine
Founder & Director
Since 2016, I have used photography and filmmaking to capture the joy found in families’ everyday, ordinary moments. Through volunteer bereavement sessions, I helped families facing grief remember their loved ones and have a safe space to talk about loss. In order to create a concept film for The Imperfect JOY® Docuseries, I was awarded the Sony Alpha Female+ grant, an honor given to only 24 women who create extraordinary art that challenges tradition, fight for important causes, and hold the torch of creativity to light the way for those coming behind them.
Meet the Director
Meet the Director
MELODY joy paine
Founder & Director
Since 2016, I have used photography and filmmaking to capture the joy found in families’ everyday, ordinary moments. Through volunteer bereavement sessions, I helped families facing grief remember their loved ones and have a safe space to talk about loss. In order to create a concept film for The Imperfect JOY® Docuseries, I was awarded the Sony Alpha Female+ grant, an honor given to only 24 women who create extraordinary art that challenges tradition, fight for important causes, and hold the torch of creativity to light the way for those coming behind them.
Executive Producers
Patrick James Lynch
Award-Winning Filmmaker, CEO of Believe Limited & Founder of Bloodstream Media
Effie Parks
Rare Disease Mom & Podcast Host,
Once Upon A Gene
Associate Producers
Nick Hudson
Executive Director, Entertainment 2 Affect Change
Tyler Gregory
Wish & Marketing Director, A Special Wish Dayton
Advisors
Kirsten Rutherford
Creative Director for World Wish Day, Executive Creative Director at TBWAChiatDay
Mike McKenzie
CEO of the Dream Factory
Tami O’Brien
37 Years & 1st Employee of Give Kids The World Village
Michael Dunsky
Mortgage Loan Officer, Fairway Mortgage Corporation
Executive Producers
Patrick James Lynch
Award-Winning Filmmaker, CEO of Believe Limited & Founder of Bloodstream Media
Effie Parks
Rare Disease Mom & Podcast Host,
Once Upon A Gene
Associate Producers
Nick Hudson
Executive Director, Entertainment 2 Affect Change
Tyler Gregory
Wish & Marketing Director, A Special Wish Dayton
Halsey Hendrickson
Rare Disease Mom & Photographer, Denali & Co.
Advisors
Kirsten Rutherford
Creative Director for World Wish Day, Executive Creative Director at TBWAChiatDay
Mike McKenzie
CEO of the Dream Factory
Tami O’Brien
37 Years & 1st Employee of Give Kids The World Village
Michael Dunsky
Mortgage Loan Officer, Fairway Mortgage Corporation
Jacose Bell
Sr. Patient Advocacy Lead, Spark Therapeutics, Inc.
Singer/Songwriter
Andrew Marshall
Wish Recipient, Singer & Songwriter, Andrew Marshall Music
About This Collection | Meet The Crew | Audience | Distribution | Events | Timeline | Families | Advocacy Partners | Industry Partners
About This Collection | Meet The Crew | Audience
Distribution | Events | Timeline
Families | Advocacy Partners | Industry Partners