Social Media

As we continue to grow our own social audience, we work with our charitable partners to share these powerful stories. Our Pediatric Rare Disease Collection will have guaranteed reach, with a commitment from partners to share our content through Instagram (IG) &/or Facebook (FB):

Give Kids The World Village: IG 51.9k + 208k followers
Once Upon A Gene: 22.1k IG + 1.7k FB followers + podcast
Rare Patient Voice: 7.8k IG + 44k FB followers + 195,000 email list
Entertainment 2 Affect Change: IG 895 + FB 922 followers + streaming app
Dream Factory HQ: 601 IG + 3k FB followers
A Special Wish Dayton: 863 IG + 5.6k FB follower

Short films, documentaries, blogs, photos and podcasts will also be shared by participating families, many of whom have active followers. For example, the Jones family has 2.5k followers on the “Super Sammy’s Heart Journey” page and whenever they have an important update their local news stations ask to do a follow-up story.

Podcast

The Imperfect JOY® podcast reached #3 in the charts for Apple Podcasts in the US for Visual Arts when it launched. This long-form method of storytelling allows us to interview more families than we could reach through photos and films alone, being accessible to anyone in the world.

Events & Media

We will have two annual events – Colorful Stories in the spring and the Story Gallery each fall (see more below). This provides an important space for you to be seen for the work you made possible and is a key opportunity for press releases and media coverage. (See more on the next page.)