Help these stories reach more families.

There is so much diversity within the rare disease community and, although we won’t be able to cover every diagnosis, we hope that these stories can help inspire more families to embrace the importance of their own stories and unite this group through their shared experiences. If you are a nonprofit serving pediatric rare disease patients, please fill out the form below if you would be willing to share these stories with your community. As a thank-you, we will list your organization on our website with your logo and a link to your website at no cost.

Please wait for form to load below. If you need assistance, please text Melody at 413-214-5209.